Episode 59 – Randee

Randee, a white woman in her forties with wavy shoulder-length brown hair, smiles at the camera. There is a stylized purple hexagon framing the photo.

Randee Bulla talks EDS, MCAS, sleep apnea, and navigating the self-doubt that comes with a life of unexplained health problems.

Transcript

I’m Brianne Benness and this is No End In Sight, a podcast about life with chronic illness.

So first of all, I’m so sorry about this unplanned and unannounced hiatus. I picked up some kind of cold or flu bug over the holidays and it just knocked me right out. I kept doing that thing where I hoped to be functional enough “tomorrow” to put an episode out and as you can tell, tomorrow took forever to come. Anyway, I’m back and I still have a lot of stories that I want to share with you!

And of course, here’s a quick reminder that I have a patreon campaign, which is a really simple way for listeners to support the show financially on a monthly basis. So if you’ve been enjoying the show and you also have a couple bucks to spare, I’d be so so grateful if you’d sign up as a patron at patreon.com/noendinsight.

This week I’m talking to Randee Bulla about EDS, MCAS, sleep apnea and a whole lot more. Randee got her diagnoses relatively late in life, and so she talks a lot about the self-doubt and the fear and the grief that come along with unexplained health problems.

I have a couple content notes for this episode. Early on, right after mentioning how much she loved horseback riding as a kid, Randee briefly describes a lightly gory leg injury. She also briefly discusses some experiences with miscarriage and ectopic pregnancies. And right after we take a water break, Randee tells a tough story about medical bias in EMTs after she called 911. 

Before we start, here’s my disclaimer:

This podcast is not intended as a substitute for professional medical advice, diagnosis or treatment. Make sure you talk to your practitioner about any questions or symptoms.

[interview transcript coming soon]

Thank you for listening to episode 59 of No End In Sight!

You can find Randee on twitter @RandeeBulla, and you can find me on instagram and twitter @bennessb. And of course you can find this show on instagram @no.end.in.sight.pod.

Plus, don’t forget to check out the new No End In Sight collection on Medium where you’ll find stories and essays about life with chronic illness. You can find that at medium.com/no-end-in-sight.

As usual, don’t forget that I have a small Facebook Group called Chronic Hustlers for people living with chronic conditions who are self employed. It’s quiet but growing, and you’ll even find a few podcast guests in the group.

And finally:

This podcast is supported by my cross stitch company, Digital Artisanal. When I’m up for it, I make simple modern patterns that you’ll actually want to hang in your home. I’ve got some fun fall patterns in the shop, and dozens of very simple icons that you can customize to your heart’s delight. I’d love it if you checked us out at digitalartisanal.com